Showing posts with label disclosure. Show all posts
Showing posts with label disclosure. Show all posts

Friday, July 29, 2011

What Information Does Jack Layton Owe to the Public - if any?

Jack Layton, for my international readers, is the official Leader of the Opposition in Canada. He has been battling prostate cancer for some time. This week he announced his temporary withdrawal from his post, because a further cancer had been detected and needed to be treated. This all is, of course, terrible news both for Mr Layton personally, as well as for his party. Since then Canadian media outlets have begun speculating how bad his condition really is, pointing to his 'raspy voice' and the fact that he participated in Toronto's gay pride parade from the back of a ricksha, stuff like that. The question arose what levels of health disclosure public officials owe us. 


The Globe and Mail in Toronto's writer suggests that nothing short of a detailed disclosure of their health problems will do. He holds the disclosure the US President provides as a matter of course up as the gold standard. Of course, why such a standard should apply to an opposition politician (who isn't exactly in charge of the military or much else for that matter) isn't addressed in that article. There's no explanation in for why Mr Layton would owe us a full disclosure of his ailments along the standards the US President has to live up to. Why should Mr Layton's right to privacy not count? According to the G&M writer, it's because by having chosen to be in the public eye Mr Layton doesn't deserve much privacy. Really? 


Nothing could be further from the truth. Mr Layton owes us nothing at all with regard to the state of his health beyond stepping down when he is unable top fulfill his duties as an elected official, temporarily if he has reason to believe he will recover, or permanently if he has reason to believe he won't recover. We might be curious, but that doesn't establish a right to know on our part. Of course, Mr Layton has not stepped down as the elected representatives of his riding, so his electorate might want to ask him questions about his prognosis. After all, he can't currently meaningfully represent them. In case he's likely to recover he should say so, in case he's unlikely to recover he should resign his seat. However, does that mean he owes us details of his health situation? Not at all, it's none of our business. Do we need to know what other cancer he suffers from? Not at all, it's none of our business.


Elected officials owe their constituents just enough information as to permit them to make a determination on whether they remain (or will be in the foreseeable future) fit for office. No more, no less. The G&M writer offers us this silly line in his defence of his aggressive intrusion in Mr Layton's private life: 'Mr. Layton is a big boy. He can take it. The last thing he needs is pity.'  - The less said, the better.

Saturday, July 05, 2008

Should we expect sexual partners to tell us about health risks?

Let's face it, many, if not most of us are hopelessly romantic when it comes to relationships, certainly new ones. Fresh in love (not to say sexually stimulated) we offer our heart to whoever it is we (well, our biochemistry/hormones) have decided to fall for. The evidence is on the table, that this is the moment where for very many of us our best intentions and precautions in terms of STI (yay, sexually transmitted illnesses) prevention fly out of the window. A study published this month in the journal Sexually Transmitted Diseases (yay, STD) reports that about 70% of us would consider our partner 'safe' if he or she was otherwise generally trustworthy. For better or worse, very very often we are wrong. HIV has reportedly long been delighted that we are as naive on this as we are, because it permits the bug to continue spreading happily ever after. Even in high-risk groups such as gay men the pandemic continues quite efficiently to spread. In the USA the CDC reports data from from 33 states. They show that between 2001 and 2006 new HIV diagnoses increased by 12% annually among men who have sex with men (13 to 24 years of age) and by 15% per year among black men in the same age group.

So, is it reasonable to expect our sexual partners to tell us about health risks such as HIV (ie that they're at risk, but don't know, or that they know to be HIV infected)? Difficult call, isn't it? On the one hand, there's plenty of good ethical as well as public health reasons for being honest with our partners about our STI risks. Successful relationships, all other things being equal, depend on honesty and our ability to trust our partner. It's unacceptable to knowingly subject a loved one (anyone, probably) to serious risk of bodily harm (that's what an HIV infection undoubtedly constitutes). I'm sure, most people understand this, and most people (most infected people, too) would not knowingly subject a loved one to serious risk of bodily harm, unless there were strong reasons for doing so. Note that I am not saying these strong reasons make their conduct anymore ethically acceptable, but they might make it understandable. I think, with the quasi-religious stigma that progressive activists as well as religious fundamentalists have created quite successfully around HIV/AIDS, it's quite demanding, possibly even too demanding of people who are infected or at risk of infections to tell their sexual partner(s). May be we'd just protect ourselves, but then, it seems most (far too many, if that makes you feel better than the word 'most') of us are not very good at that either. Anybody with a magic bullet please?!

What amuses me a bit is the continuation of a quasi-enlightenment based response to the problem at hand: The Washington Post duly editorializes, 'The fight against AIDS demands not only vigilance but also continuous education. An informed populace is the best defense against this ferocious epidemic.' This belief that education is the key fascinates me, as we have overwhelming evidence that our response to HIV risk (in the context of sexual behavior) isn't rational to begin with. We know it not only for the USA but for plenty of other countries. Just one example from ... of all places, Angola, reported by the kaiser family foundation: 'According to research by ANASO, 70% of youths in the country do not use condoms, despite their awareness of HIV. The network plans to partner with the Ministry of Education and communities throughout the country to mobilize and educate 340,000 young people through 2010.' So, if 70% of sexually active youngsters in the country don't use condoms despite having relevant knowledge of HIV, and access to rubber, what makes people stick with the idea that it's about education? Beats me. Anyone with a magic bullet on this, email me (the dinner is on me :): udo.schuklenk@gmail.com . Hey, I know about A and B already, so don't bore me with your religious drivel on this, if that is what you think is worth mentioning. Doesn't work either, just check out the unfolding AIDS disaster in the religious right's posterboy on this, Uganda.

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